Monday, March 26, 2018

Wait In Hope

Life and times, since being diagnosed with Secondary Adrenal Insufficiency , is a constant struggle for me. Oh how I wish it were as simple as just taking this one pill and it would all be okay.  Sorry, I just flashed to Lord of the Rings (haha).

I have to take hydrocortisone every day for the rest of my life.  I have to take it in order to be able to function.

Since I have a tumor on my pituitary gland, nothing in my body functions the way that it is supposed to function any more. All of the hormones that are produced by the pituitary gland are no longer being produced, so I have to take medicine to try and make up for the lack that my body is feeling. Last year, I tried this and well,,,,

I was put on progesterone and estradiol (by my endo) to help with hot flashes and night sweats. This all took place around the first part of December 2016. Around February 2017, I was spotting. I had not dealt with that for 4 years!!! Nothing, nadda, zilch, zero. In March, I had my first cycle <-- in 4 years and it was heavy. I ended up having to reschedule my gynecological visit because I was bleeding so much. I finally had my appointment about a week later and she would not even hear or consider that all of my bleeding was instantly brought on by starting the estrogen. So she scheduled an ultrasound for me. I endured that ultrasound and it was very painful. I contribute the painfulness of it to fibromyalgia. It was so painful for me that I almost passed out.  I was then told that my uterine lining was thick. WHAT!!!  Just since December? What is up with that? And had to undergo a D & C.

I have had a D & C before, so I knew what to expect with this one. And it was with this same doctor. However, Tim told me, that it did not take nearly as long as he was told it would take. When it was over, the doctor told him that it was nothing like she was expecting it to be. Okay which leads you to believe that I did not have to undergo a D & C at all.  Maybe that ultrasound technician did not read things right?  I don't know, just makes you go, hmmm.

Following the D & C, I was told to continue with the progesterone and estradiol, so I did. At my follow up visit, I was changed to a different medicine because I was still having cramps like I have never had before and still spotting, but nothing like I was before the D & C. I thought that maybe it was good that I had the D & C done after all.

Another 3 months goes by, I am still having major cramps, but at this point, I am visiting with my endo again and she told me to stop taking all estrogen meds. Just stop. So after my next follow up with the gynecologist, we decided that I would stop taking them.

In the middle of all of that, I started dealing with low blood sugar issues. I know, I know, if it isn't below 70 on the reading, it is not considered to be low blood sugar, but something was different for me. I was starting to feel hungry all of the the time. If it was time for me to have breakfast, I had to eat. I could not wait. Then if I took a dose of my meds, I would be hungry following that and need a snack.  Like I said, hungry all of the time. So I started closely monitoring my blood levels and trying to eat every 3 hours instead of all day long like I wanted to do.

I mention the low blood sugar thing because I had thought it was all due to the estrogen pills that I was taking at the time. Things seemed to level out once I stopped taking them. However, I am struggling with it all again.

Yes, I am hungry all day long. If it is noon, I need to eat lunch, don't want to be late. Then at 1:30, I am due another dose of hydrocortisone and will really need to have a snack. I just do not know what is going on with me.

When I was at the endo last, she did a test of my blood sugar levels and it all came back normal. So what in the world is causing this. The time change? I am trying to find my needle in all of these other needles, will you please help me?

That is my life right now.

Your turn:

 How are you doing? What are your health concerns? Please feel free to share them with me. If you allow it, I will be happy to help carry your load.

Your Sister,

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