What lifestyle adjustments have you had to make because of your chronic illness? What adjustments are you willing to make in order to help things go a little smoother?
Having a chronic illness means making lifestyle adjustments. Most of the time, I feel like I manage these adjustments really well and do not mourn my old way of life. Most of the time.
One adjustment that T and I have had to make is in regards to vacations. He just had a week off and we stayed around the house. I am not generally an outgoing type of person, but I do miss being able to take a trip.
The last actual vacation we had was in 2014, before T was diagnosed with Burkitt's Lymphoma and before I was diagnosed with secondary adrenal insufficiency ( Addison's Disease).
Since that trip in 2014, I have also found out that I have fibromyalgia. This means that I hurt everywhere, all of the time. The thought of sitting in the car for great lengths of time causes me pain.
So, we stayed around the house. We ran errands and I discovered that I now suffer from heat exhaustion very easily. I think that is due to the fibromyalgia, but since I have yet to find a doctor that will treat me, I am not really sure about anything.
Most of the time, I do not mourn my old way of life until I am in the position of being able to get out and spend time with my husband. I manage one errand and I am done for the rest of the day. Oh, and if I push myself to do more because I enjoy being out with T, then I will be tired and in a lot of pain the next day.
Avoid Heat Exhaustion
1. Buy a small portable fan.
Buy yourself a small portable fan. They have some that you can fill with water so you can mist yourself. There is even one that you can wear around your neck <-- hands free.
2. Carry a small cooler of damp wash rags.
Buy a small cooler. We bought a lunch box and a freezer pack. Then I picked out several wash rags to be used just for my outings <--- in pink and purple. Then before you leave the house, you dampen those wash rags, roll them up and store them inside the lunch box with the freezer pack. Be sure to take one of the wash rags, put it into a sandwich bag and store it in your purse.
3. Wear light colored clothes.
Wear light colored clothes. Dark clothes absorb the heat.
4. Carry bottled water with you.
Be sure to carry bottled water with you wherever you go so you can stay hydrated. Pick up some propel to mix in to add some flavor.
5. Cut off all your hair.
I know this is a big one. But if you are not overly attached to your hair, cut it off. I had T do mine and it is a huge help. Then you can buy bandanas to put around your head to keep from getting burned. And, when you get hot, you can wet the bandana and put it back on.
Psalm 139:13-16 NIV For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be.
Dear Father, thank You for being in control of my life. When I start to get bogged down with focusing so much on my struggles, please remind me that You are the One that created my inmost being and knitted together inside my mother's womb. Father, I do praise You because I know that I am fearfully and wonderfully made. Everything You do is wonderful. Thank You for always being with me. In Jesus' name, Amen.
Life With Secondary Adrenal Insufficiency
Wait In Hope
Don't Struggle Alone
Ease Fibromyalgia Pain
Do you have any tips to share that might be helpful to others?
How can I pray for you today?
If you will allow it, I will be happy to help carry your load.
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